So this happened…
I’m a 2025 National Rare Artist Awardee!!! Yes, it feels good 🥰. If you voted, thank you 💯
What does being a National Rare Artist mean?
It means that I’ll be able to advocate for people, who like me, are living with a rare disease.
I’ll get to tell my story to foster more awareness, which will hopefully lead to more funding, more research and better health outcomes. I’m very excited about this part of my art journey because it directly helps people.
In a digital world that’s spinning incredibly fast, art makes us stop, makes us pause and look at one another. Keep shining your light, even from way over here, I see you 🥰
“In Someone Else’s Shoes” the viewer is asked to see what someone feels. We’re reminded that we’re more alike than we are different. In that way, empathy and compassion makes us feel good.
Having a rare disease can be like standing in a room full of people and feeling alone. For me, and many like me our rare disease is invisible, that is you won’t see it, but we know it’s there… we feel it, because it’s always there, lurking inside us.
Like wearing shoes that are way too big, you can’t outrun your rare disease and it’s challenging, nearly impossible to navigate the world of medicine alone, without policy change and legislation.
#sol 🙂
Gratitude 🙏❤️ @rare.artist @rare_advocates @everylifeorg You are appreciated
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